Clinical Data Repository

NIH Award to Establish Data Integration Hub for Common Fund Programs

October 17, 2023 - Researchers at the University of California San Diego and the Icahn School of Medicine at Mount Sinai received an $8.5 million award to establish a data integration hub to accelerate the work of National Institutes of Health (NIH) Common Fund-supported projects. These programs aim to gather data from human cells, tissues, and patients to bolster...

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FL Cancer Center Joins Global Genomic Data Sharing Registry

by Shania Kennedy

Sylvester Comprehensive Cancer Center, part of University of Miami Health System (UHealth), has been selected for membership in a global genomic data consortium supporting the American Association for...

Partnership to Support National Gastroenterology-Focused Clinical Registry

by Shania Kennedy

The GI Quality Improvement Consortium, Inc. (GIQuIC), a joint collaboration of the American College of Gastroenterology (ACG) and American Society of Gastrointestinal Endoscopy (ASGE), has launched a...

Precision Oncology Data Registry May Perpetuate Health Disparities

by Shania Kennedy

Researchers from Massachusetts General Hospital (MGH) revealed in a study published in npj Precision Oncology that the American Association of Cancer Research (AACR) Project Genomics Evidence Neoplasia...

Improving Care Quality with New Data Aggregator Validation Program

by Erin McNemar, MPA

The National Committee of Quality Assurance (NCQA) has launched a new Data Aggregator Validation program that will assist in ensuring the validity of clinical data used for quality reporting. The new...

AI Predict Mortality Risk Using Socioeconomic, Clinical Data

by Erin McNemar, MPA

By using socioeconomic and clinical data, researchers developed an artificial intelligence tool to predict 30-day mortality risks in patients with cancer. Cancer is one of the leading causes of death...

Yale Establishes Biomedical Data Science Fellowship Program

by Jill McKeon

Yale University and Boehringer Ingelheim have partnered to launch a Biomedical Data Science Fellowship program, to be awarded to post-doctoral researchers focused on drug discovery and...

Patient Data Registry Approach May Enhance Rare Disease Research

by Jessica Kent

Researchers at the Perelman School of Medicine at the University of Pennsylvania have designed a new kind of patient data registry to advance rare disease research. In a paper published in Cell...

Collecting Genomic Data to Accelerate COVID-19 Drug Discovery

by Jessica Kent

In the race to find potential treatments and therapies for COVID-19, genomic data is being generated with unprecedented frequency. For more coronavirus updates, visit our resource page, updated...

“All of Us” Opens Precision Medicine Data Platform for Beta Testing

by Jessica Kent

The All of Us precision medicine research program has opened its data platform for beta testing, allowing investigators to offer feedback on its preliminary resources. The All of Us Researcher...

Consortium to Launch Big Data Biobank for Coronavirus Research

by Jessica Kent

Partners HealthCare, Biogen Inc., and Broad Institute of MIT and Harvard are partnering to launch a big data biobank for coronavirus research. For more coronavirus updates, visit our resource...

Big Data Dashboard Tracks COVID-19 Cases and Response in Indiana

by Jessica Kent

Regenstrief Institute has developed a big data dashboard to help the state of Indiana track and respond to the COVID-19 outbreak. For more coronavirus updates, visit our resource page, updated...

Federal Effort Aims to Optimize Search Engines for COVID-19 Research

by Jessica Kent

The US Department of Commerce’s National Institute of Standards and Technology (NIST) and the White House Office of Science and Technology Policy (OSTP) have partnered to support the development...

New Data Repository Could Speed Precision Medicine for Cancer

by Jessica Kent

The National Cancer Institute (NCI) has launched the Proteomic Data Commons (PDC), a next-generation proteomic data repository that will facilitate data access, sharing, and analysis, and speed the...

Google Makes COVID-19 Datasets Freely Available to Researchers

by Jessica Kent

Google Cloud is offering researchers free access to critical coronavirus information through its COVID-19 Public Dataset Program, which will help accelerate analytics solutions during the global...

Johns Hopkins Develops Real-Time Data Dashboard to Track Coronavirus

by Jessica Kent

The Center for Systems Science and Engineering (CSSE) at Johns Hopkins University has developed an interactive, web-based dashboard that tracks real-time data on confirmed coronavirus cases, deaths,...

Cancer Center Joins CancerLinQ Big Data Analytics Platform

by Jessica Kent

Roswell Park Comprehensive Cancer Center of Buffalo, New York has signed an agreement to use the CancerLinQ platform, an oncology data repository that provides cancer organizations with actionable big...

FDA Launches Public Database Providing Information on HIV Treatments

by Jessica Kent

The Food and Drug Administration (FDA) has launched a public, interactive database that will offer critical information about antiretrovirals (ARVs) to treat HIV. “This launch is an important...

Data Mining Tool Could Help Train Machine Learning Models

by Jessica Kent

Researchers at Purdue University have created a new framework for mining data to train machine learning models used in drug development. Using machine learning for drug development requires...

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